Today the twins are two and a half. That means 913 days of having them in our family. It has been a crazy, exciting, stressful 913 days. we have conquered walking and talking and sleeping through the night. We have fought tirelessly to beat rumors of failure to thrive, food allergies, and even Cystic Fibrosis. After countless tests, the fabulous Drs at Spokane Pediatric Gastroenterology diagnosed The twins with Gastroparesis.
What Is Gastroparesis?
A condition that affects the stomach muscles and prevents proper stomach emptying
People may experience:
Pain: in the abdomen or upper abdomen
Gastrointestinal: vomiting, heartburn, belching, indigestion, bloating, or regurgitation
Whole body: dehydration, malnutrition, loss of appetite, or nausea, and extreme weight loss
Sources: Mayo Clinic and others.
After months and months of medications and attempts at weight gain, we now know five ways to not cure gastroparesis. Don't worry, we serve a really great God, and believe without a doubt He is completely in control.
We spent a few days this week at Seattle Children's Hospital meeting with an amazing doctor who assured us that there is hope. Our next move is to increase the dosage for the twins' medications and use them all at the same time instead of individually. The goal for the next three months is that both twins gain weight, or at the very least maintain. If we can gain even an ounce we can avoid the looming " feeding tube" discussion.
Such goofy boys
Today we celebrate every little milestone and try our best to enjoy the hard days with the good ones. Parenting these boys is a gift.
